

This site is for those who have suffered and/or still suffer from the devastation of Lyme disease and for those who love them. Fight on!

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Disclaimer:
The information on this website is for general informational purposes only and is not intended to diagnose, treat, cure, or prevent any medical condition. This site is not a substitute for professional medical advice, diagnosis, or treatment.
Always consult your physician or qualified healthcare provider regarding any questions you may have about a medical condition or before making changes to your treatment, medications, or dosages.
Do not disregard or delay seeking professional medical advice because of information you have read on this website.

CRITICAL POINTS
I was unaware of my Lyme exposure at the time.
The bite looked more like an infected hair bump on the top of my head — almost like a unicorn horn.
I didn’t develop the classic bull’s-eye rash until years later, on my shoulder.
I didn’t make the connection between my illness and the bite until 2013 — nine years after the bite and two years after my diagnosis.
DECLARATION OF WAR
My battle began in the fall of 2004, when I first got the tick bite. At first, a few symptoms appeared — things I chalked up to pushing myself too hard with school and activities. But over time, the symptoms became more varied and began blending together instead of showing up one at a time.
In the summer of 2007, while taking a physiology class, there was construction work being done on campus. After constantly breathing the fumes, my cycle changed for the worse, my skin reacted, and I began having random facial swelling. The odd part? I was the only student who reacted to the fumes. It got so bad that I had to take an exam late — which normally meant swapping a multiple-choice test for a short essay version of the same questions. Thankfully, I looked so awful the day of the exam that my professor gave me the multiple-choice version anyway. Woo hoo!
My first symptoms — before even knowing about Lyme — included abnormal migraines, IBS, menstrual issues, facial swelling, sciatic nerve problems, weight gain, low body temperature, and brain fog. But when the heart rate issues joined the party and refused to calm down, I knew something was seriously wrong.
One night in early 2010, while working on an assignment for my teaching credential program, I kept forgetting what I was trying to type. Then half my body went tingly. I rushed to the ER — thankfully, it wasn’t a stroke — but that was a huge red flag. The symptoms escalated quickly, forcing me to drop out of the credential program.
My general practitioner, who had been following my unexplained symptoms for years, knew something was definitely off. But without conclusive tests, there wasn’t much direction. Then she said three words most doctors are too arrogant or too afraid to admit: “I don’t know.”
Those three words told me more than any test result — they told me my doctor believed me and was willing to help figure this out. What a relief!

ALLY or ENEMY
One of the biggest challenges once Lyme Disease is suspected is finding a good source of medical help. This is a battle that requires allies — and plenty of ammunition. In my experience, being dismissed by doctors (even those who allegedly specialize in infectious disease) is far too common. Do not let this discourage you!
Remember, this is your body and your life. You are the General of this war. While many doctors truly want to help you win this fight and are open to nontraditional approaches, others can be too focused on whether your symptoms or test results fit neatly into their textbooks.
Too often, medicine is treated like a numbers game — and that approach doesn’t always capture the whole picture. Misdiagnosis and incorrect treatment often stem from ignorance that some doctors simply don’t want to admit. Yeah, I said it!
Some forget they’re no longer in med school studying cadavers, but working with living, breathing, feeling people who are suffering and scared. If you’re a doctor who dismisses patients, unless you’ve found the cure for death, remember — you’re still a practitioner. You’re practicing medicine, not perfecting it, and that means there’s still much to learn.
But to the doctors who listen — who actually hear their patients and respond to what’s really going on rather than relying on assumptions — bless you. You’re the ones making a difference.
And to my fellow Lymies: if you’ve been dismissed or made to feel like you’re the problem, remember this — it’s not your fault, and there is hope.